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Sun, Nov 04 2018

Hope for Harper Grand Ball,

Winchester, Virginia, United States Winchester, Virginia, United States
One Sponsor Confirmed
The George Washington Hotel

  • About the event

    Harper Gochenour is a 3 year old little in Winchester, Virginia and one of 11 children in the world with an extremely rare neurodegenerative disease known as UBTF Disorder.  Slowly sweet Harper will lose the ability to speak, and her cognitive and motor functions.

    But there is Hope for Harper yet!  A doctor at the Univeristy of Tennessee is confident in a cure, possibly as soon as 2019 with proper funding. 

    Harper's Grand Ball is a magical fundraising event to help support Harper and her family reach their goals in funding medical research in this rare condition.  It is our goal to raise as much as possible for sweet Harper and give her family a much deserved day of fun and hope for thier future. 

     

    Why should you sponsor?

    Sponsoring this event, not only helps Harper and her family, but the familes of the other 11 children worldwide currently suffering from this rare disease.  Fundraising for a cure also helps future families that may face this overwhelming fate as well. 

    All monies raised will go directly to the support this event, family and medical research. 


    Shannon Hodges

    Orgnaizing this event has been so amazing and uplifting.  Seeing my community really come together and donate their time and services to this little girl has made me so grateful that I could help this family in any way possible.  As a mom myself, I cannot imagine what the Gochenour Family is going thru with Harper and any weight I can help take off their shoulders, I am willing to do. 

    There are a lot of causes and events out there worth supporting!  We sincerely hope you will consider helping Harper on her journey to a cure!

    Shannon

    Contact the Organizer Contact the Organizer

  • 101-250 attendees expected


    40% Male Attendees


    60% Female Attendees

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