The annual fara Gala Brisbane is sure to be a fabulous night with some very special guests, great food, wine and entertainment in support of fara's quest to find a cure for Friedreich Ataxia.
Money raised at the fara Gala will support Friedreich ataxia research and ensure Australia is ready for Friedreich ataxia gene therapy clinical trials.
riedreich ataxia is a debilitating, life shortening degenerative neuro‐muscular disorder, which affects about 1 in 30,000 people in Australia and New Zealand.
It is most commonly diagnosed between the ages of 5 and 18 years and robs children and young adults of their mobility.
Friedreich ataxia leads to loss of muscle co-ordination, fatigue, vision impairment, hearing loss and slurred speech, scoliosis (curvature of the spine), diabetes and serious heart conditions.
It is caused by an inherited genetic mutation that limits the production of a protein called frataxin. 1 in 90 people are carriers and don’t even know it until it affects their family.
Although there has been significant progress towards treatments, today there is no cure.
WHO IS FARA
Friedreich Ataxia Research Association Australia (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich ataxia.
fara’s mission is to slow, stop, and reverse the damage caused by this rare disease. fara has contributed over $4 million to Friedreich ataxia research in Australia since its inception in 2003.
I'm part of the organising committee for the Brisbane FARA gala. This event is community organised with most of the committee either having FA or caring for someone with FA. My best friend, Samantha, and her sister both have FA and we have been fundraising for many years to help find a cure. I've travelled overseas with my friend and met many of her international friends who are also affected by FA and other types of ataxia. Sam is such a light in my life. Through helping with fundraising, I can only hope to give back a portion of what she has given to me.
Contact the Organizer Contact the Organizer3 available packages from A$500 to A$10000
https://www.sponsormyevent.com/gala-in-the-stars-with-fara-undefinedDONATION OF AUCTION ITEMS The fara Gala charity auction and raffle is an excellent opportunity for your organisation to promote your products or services by donating to our silent auctions. The silent auction and raffle are one the biggest sources of fundraising for the evening. A variety of quality products and services such as holidays, experiences such as fishing, scenic flights, cruises, valuables such as artwork, jewellery, sporting memorabilia, restaurant and hotel vouchers help us raise money for research. Please contact us if there is anything you, your business or an individual or business you know may be able to donate. Your generous donation may be acknowledged in the following ways: • Logo on the large screen in the ballroom during the auction • Details of your donation (including a logo) on the electronic bidding website used before and during the event • Opportunity to distribute information or promotional material to guests on the night • Acknowledgment of your support in speeches • Logo in the fara newsletter, distributed throughout Australia
10 available
• A table of 10 guests at the Gala • Logo on home page of event website and electronic bidding website used both pre event and during the event • Logo on the large screen at the venue throughout the evening • Logo in the fara newsletter, distributed throughout Australia • Special acknowledgment of your support in speeches • A certificate of appreciation
10 available
• Two tables of 10 guests at the Gala • Logo on the home page of the event website and electronic bidding website used both pre event and during the event • Logo on the large screen at the venue throughout the evening • Logo included in the fara newsletter, distributed throughout Australia • Ability to distribute your company’s promotional material at the event • Special acknowledgment of your support in speeches • A certificate of appreciation • A private screening of the inspiring movie The Ataxian for your organisation
10 available